California Sickle Cell
Data Collection Program
California’s Sickle Cell Data Collection (CA SCDC) Program aims to improve access to quality healthcare, reduce health disparities and increase awareness of the disease by providing data, conducting analyses, and communicating information to partners throughout the state.
Sickle Cell Disease in California
Public Health Surveillance
CA SCDC combines data from newborn screening, hospital discharge, medi-cal claims, vital records, and Sickle Cell Disease (SCD) clinics to better understand the prevalence of SCD and to identify long-term trends in diagnosis, treatment, and healthcare access for people with SCD in California.
Our Data
CA SCDC works with data stewards throughout the state to collect data on the population living with SCD. We work with:
- The California Department of Public Health
- The California Department of Health Care Access & Information
- The Department of Health Care Services
- Clinic Partners throughout the state
Communications
We provide communications and information to a variety of audiences including sickle cell warriors, community based organizations, and healthcare providers.